Professionals Portal

Roger Neilson Children’s Hospice is a unique, warm, home-like environment where children and families receive specialized care to meet their needs, improve their quality of life, and create memories.

Click on the headings below to learn how we can support you, your patients and their families and how to access our services, including admissions to Roger Neilson Children’s Pediatric Palliative Hospice Care, Perinatal Care and Grief Care.

Admissions

  • CHEO’s relationship with Roger Neilson Children’s Hospice?

    While separate organizations, Roger Neilson Children’s Hospice works closely with many teams at CHEO, especially the Palliative Care Team. Children and families who require and wish to receive services from Roger Neilson Children’s Hospice must be referred to the CHEO Palliative Care Program.

  • Criteria for palliative care services at Roger Neilson Children’s Hospice and how to make a referral?

    The following criteria must be met to be eligible for hospice palliative care services at Roger Neilson Children’s Hospice:

    • Be referred to the CHEO Palliative Care Team prior to their 18th birthday while RNCH services will extend to their 19th birthday.
    • Live in Ontario and have a valid OHIP card. Children and families living in Quebec or Nunavut are eligible while some service offerings may vary based on provincial/territorial guidelines (discussed with families when they are first referred).
    • Have a life-limiting illness with a progressive decline in health status
    • Be prepared to participate in discussions of serious illness and care planning with the team at Roger Neilson Children’s Hospice
  • Admissions to Roger Neilson Children’s Hospice are dependent upon the prioritized needs of all children in the program in the following order:
  • Referrals must be from a physician, a community family physician, a pediatrician, or a physician seen regularly at CHEO.

    Referrals must be from a physician or nurse practitioner involved in the child’s care,

    If the child is deemed eligible, a letter will be sent to the referring provider to inform them of the team’s decision. The team will inform the family and child about eligibility for care at Roger Neilson Children’s Hospice.

    A referral to the CHEO Palliative Care Team can be sent for any child who could benefit from services. We encourage early referrals so the family can establish a therapeutic relationship with the Team.

    Non-urgent referrals can be sent to the CHEO Pediatric Palliative Care Team via EpicCare Link or by fax at 613 523-3617. Referrals from CHEO teams can be sent via Epic.

    If the referral is urgent, call CHEO at 613-737-7600 #0 and ask for the Palliative Care physician on call. The team is available 24/7 for urgent palliative care related matters..

    Children referred to the CHEO Palliative Care Team may be deemed ineligible for Roger Neilson Children’s Hospice services. If their medical condition changes, they can be reassessed if they are referred again. Please be assured that careful consideration is given to all referrals.

Perinatal Program

  • Who qualifies for perinatal palliative care at Roger Neilson Children’s Hospice and how can I make a referral?

    The Perinatal Palliative Care Program at Roger Neilson Children’s Hospice is offered to parents and families informed of a prenatal, perinatal or neonatal diagnosis of a life-limiting illness or a life-ending diagnosis. Referrals are accepted from 20 weeks of gestation to 28 days old.

    Obstetricians or primary care physicians should fax a referral to the palliative care team at 613-523-3617. The care team will triage these referrals before contacting the family.

    If the referral is urgent, call CHEO at 613-737-7600 #0 and ask to be connected with the Palliative Care physician or nurse. The team is available 24/7.

    Referrals from CHEO are received, as all other referrals, via EPIC.

    (Link to Perinatal Bereavement Program)
    (Perinatal Palliative Care Support )

Grief Care

General Information

  • Initiating a discussion on palliative care?

    Roger Neilson Children’s Hospice works closely with the CHEO Palliative Care Team. You can contact the on-call physician or nurse 24/7 at (613)737-7600 #0.

  • Resources to share with patients and their families?

    Information on Roger Neilson Children’s Hospice and its services and facilities for families can be found in the family section of the website at RogerNeilsonChildrenshospice.ca

    • Roger Neilson Children’s Hospice
    • Grief Support
    • End of Life Care
    • Pediatric Hospice Palliative Care
    • Perinatal Hospice Palliative Care Support
    • Respite Care
    • Supportive Care
    • Symptom Assessment
    • Therapeutic Recreation
    • Transition from Hospital to Home
    • Visiting Home Hospice
  • Accessing research and professional resources on palliative care?

    All research at Roger Neilson Children’s Hospice is geared toward advancing our patient care and patient outcomes. Both quantitative and qualitative studies are supported and approved by the Research Committee. Research priorities are end-of-life symptom treatment, recognition and monitoring, parents’ assurance of the quality of care, pain assessment and control in palliative care patients, and grief. For more information on current studies, please follow Roger Neilson Children’s Hospice

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Professional Opportunities